Friday, December 31, 2010
Wednesday, December 29, 2010
The kids were also blessed with a basket full of goodies, which included warm blankets to cuddle with, candy, popcorn, a few movies AND the Toy Story 3 movie. Jacob LOVES Toy Story. We have watched it several times and each time Jacob gets tickled at the same scene. For your enjoyment here is Jacob enjoying Toy Story 3.
Monday, December 27, 2010
1. Make a direct online donation on the Lifesong website. Please indicate in the "purpose line" the following "Maas Family #989 adoption fund".
2. You may send your donation through the mail to: Lifesong for Orphans, P.O. Box 40, 202 N. Ford Street, Gridley, IL 61744. In the memo section of your check put: Maas #989 adoption fund.
In order to report this donation on your 2010 taxes the donation must be completed online or postmarked by December 31, 2010.
Thursday, December 23, 2010
Wednesday, December 22, 2010
I also wanted to tell you of a few prayer request for our family.
1. Our dossier is on its way to Ethiopia. The timing of our court date is a concern. We have another child having major surgery on March 24th. Recovery time is a couple of weeks. We really would like to have a court date prior to March 24th.
2. We still need to raise $13,000 for adoption fees and travel.
3. We continue to look for a home that will meet our families needs and future children. Our hearts desire is to continue adopting and loving children with special needs. Our home continues to be an obstacle for us. Please stay in pray with us as we continue to look for a home.
Monday, December 20, 2010
A friend invited me to a cookout with her young adult group at church. As the night went on most everyone left except 5 or 6 of us. I knew absolutely no one except the friend who invited me. We decided to play truth or dare around the bonfire. Well, those of you who know us personally know that my husband is a goofball. So, during the game of truth or dare he asks me, truth or dare. I chose truth. His question, "do you want to go out with me?". Mind you we had only known each other a couple of hours. I, of course, got embarrassed and hid under the blanket I was staying warm with. When it was my turn to ask truth or dare I sent the question back to him. Do you want to ask me out? Of course he answered, YES.
He had to go out of town that next week so two weeks later we went on our first date, that was in October 1997. We went out to lunch after church. We could not stop talking so after lunch we went back to his house and talked for hours. I think we spent every free moment together from that day on. We started looking at engagement rings after a couple of weeks. In November 1997 Darren proposed to me with a fortune cookie. Yes, that is only one month after we met.
We really did not want to wait to get married. We were 25 and 26 years old. We really could not find a good reason to wait so in December 1997 my father married us a week before Christmas. YES, that is only two months after we had our first date. We planned a Wedding Celebration for the next summer so we could celebrate with all our extended family and freinds. You cannot plan a wedding in one month. So that is our LOVE story!!
Wednesday, December 15, 2010
Sera has been home for 11 months and we have seen doctor after doctor. FINALLY, we have had some success!!!!!!!!! First, I have found a team of doctors that I LOVE at Cincinnati Children's Hospital. We have Sera scheduled to have surgery on her hands and feet in March at Shriner's Hospital. Lastly, we have a syndrome diagnosis.
Sera has been diagnosed with Bardet-Biedl Syndrome. Bardet-Biedl is a rare genetic disorder which affects multiple systems.
Bardet-Biedl syndrome is a disorder that affects many parts of the body. The signs and symptoms of this condition vary among affected individuals, even among members of the same family.
Vision loss is one of the major features of Bardet-Biedl syndrome. Loss of vision occurs as the light-sensing tissue at the back of the eye (the retina) gradually deteriorates. Problems with night vision become apparent by mid-childhood, followed by blind spots that develop in the side (peripheral) vision. Over time, these blind spots enlarge and merge to produce tunnel vision. Most people with Bardet-Biedl syndrome also develop blurred central vision (poor visual acuity) and become legally blind by adolescence or early adulthood.
Obesity is another characteristic feature of Bardet-Biedl syndrome. Abnormal weight gain typically begins in early childhood and continues to be an issue throughout life. Complications of obesity can include type 2 diabetes, high blood pressure (hypertension), and abnormally high cholesterol levels (hypercholesterolemia).
Other major signs and symptoms of Bardet-Biedl syndrome include the presence of extra fingers and/or toes (polydactyly), intellectual disability or learning problems, and abnormalities of the genitalia. Most affected males produce reduced amounts of sex hormones (hypogonadism), and they are usually unable to father biological children (infertile). Many people with Bardet-Biedl syndrome also have kidney abnormalities, which can be serious or life-threatening.
As you can imagine we still have a lot to investigate. Sera will be having tests done on her eyes to check her retina's more closely. She has already lost some of her field of vision. She basically only has her central field of vision and we are not sure how good that is. We were told to expect total vision loss at some point. We will need to check her kidney and liver function. We already now that she has one cyst on her kidney. We will need to monitor that to see if she begins to produce more cysts. Her weight has become a huge issue already. She is screaming when we do not give her more food. Although we have already began to limit her food intake she still continues to gain weight. I am now working with a nutritionist and I am going to start measuring her calorie intake. Sera is also having issues with her endocrine system. She is already taking some medications and we will need to add a few more to regulate her system. We were also told to expect mild to moderate cognitive disabilities. Of course, we serve a BIG GOD and only HE knows her abilities.Additional features of Bardet-Biedl syndrome can include impaired speech, delayed development of motor skills such as standing and walking, behavioral problems such as emotional immaturity and inappropriate outbursts, and clumsiness or poor coordination. Distinctive facial features, dental abnormalities, unusually short or fused fingers and/or toes, and a partial or complete loss of the sense of smell (anosmia) have also been reported in some people with Bardet-Biedl syndrome. Additionally, this condition can affect the heart, liver, and digestive system. Taken from Genetic Home Reference
We are pleased to finally have a diagnosis so we can create a plan of action.
GOD IS GOOD ALL THE TIME
Friday, December 10, 2010
We are a very tidy and organized family, which has been a blessing. There is just not much usable counter space. I can't imagine trying to work in this kitchen if the counters were covered with junk. I have to keep ALL(except a coffee pot and electric skillet)of my small appliance in a cabinet. There is just NO counter space. I use the coffee pot and electric skillet daily!! We have a very small closet/pantry. I would love to do more cooking from scratch but I just don't have a place to store items or counter space for preparation. Reorganize the kitchen? Any suggestions?
So here is my question to you. How do you do meal preparation?? I am already having to double recipes. Even though our children are small they are consuming a good amount of food. What do you use to prepare meals in? Do you have industrial size appliances? Crock pot? Electric skillet? We tend to purchase inexpensive small appliances and they just don't seem to be holding up well with all the use. Any suggestions?
Thursday, December 9, 2010
Tuesday, December 7, 2010
Monday, December 6, 2010
Our daughter Sera, is visually impaired. At this point we are still not sure what she is seeing. She is considered to be legally blind but we believe she has some type of vision. It is amazing at 2 years old how well she has learned to compensate for her lack of vision. Before she got her glasses she could not see anything beyond 5 inches from her face. Like I said, we are not sure what she is seeing now she has glasses and what her brain is processing. We do know that she has no depth perception and no peripheral vision. She is SOOOO good at compensating you may not even notice her using her hands to guide herself. Here is a video of Sera playing with a toy with both of her eyes patched so that we KNOW she cannot see anything.
Although Sera is learning to use her "stick" when she is outside of the home and we are beginning to talk about her learning braille, I still have a hard time seeing her with a visual disability. She is just Sera! It was really good for me to see the Anderson family and the obstacles they face daily. That will be a reality for our daughter some day. As she gets older her visual impairments will be more obvious. After watching the show and then looking around our house I see we have a lot to work on. We want to give Sera a home where she is safe and can grow and blossom into the beautiful girl the God created her to be.
Saturday, December 4, 2010
Friday, December 3, 2010
Thursday, December 2, 2010
I asked God to break my heart for what breaks His. Have you? Are you brave enough to take a step further and actually take action? Are you crazy in love enough to get out of your comfy lifestyle and follow Him to the weak, helpless, and hungry?
Wednesday, December 1, 2010
I am not going to re-invent the wheel when I have wonderful friends who do a great job giving out the TRUE facts about HIV. I am also not going to overwhelm you with information, so here are a few links that will just take a couple of minutes to look at. Check back tomorrow for more links and personal stories.
Project Hopeful HIV/AIDS Fact Sheet
AIDS & Me: Hydeia Broadbents Story
The American Spirit segment of the CBS Evening News with Katie Couric TONIGHT!!!! Tune in for more TRUTH about HIV.
Tuesday, November 30, 2010
Monday, November 29, 2010
We are not about to change that philosophy now. I know we have not said much about our soon to be daughter but that is changing right now. We wanted to get our paperwork in order first. I am happy to report that our dossier is complete and will be sent to the adoption agency TOMORROW!!!
Another reason we have chosen this week to talk more about our daughter is because Wednesday is World AIDS Day. Our soon to be daughter is HIV+ and we don't want her to be ashamed of her medical condition. She is a beautiful and smart little girl who just happens to have a medical condition which requires treatment. All of our children are beautifully created by our Heavenly Father.
There are many misconceptions regarding the diagnosis of HIV. This week we are going to focus on education about HIV. Check out the video below and then jump over to the Project Hopeful website.
Sunday, November 28, 2010
WOOOHOOO! Jacob has his new wheelchair. This chair will allow him to use his Dynavox speaking device, if Dynavox ever sends us the attachment arm. Another long story, we have been working on for far too long. It is also more sturdy so hopefully he will not break it when he goes into extension. He broke his other wheelchair multiple times. If you know us in the "real world" you are probably wondering why you have not seen his new chair. Well, there are multiple reasons. #1 it will not fit into our van. #2 it is super heavy and I cannot lift it. I can barely drag it up the front stairs of the house(when Jacob is NOT in it). So here is a picture of him in his wonderful new chair that you may never see in person.
Decorating the house? Making Christmas cookies? Celebrating with family and loved ones? Exchanging gifts?
What if this year you gave gifts that not only celebrated your loved ones but brought the love of Christ to a child in need? An orphan in Africa, India, Ukraine, or Honduras?
This year Lifesong for Orphans has gifts that will do just that. Give the new Lifesong cookbook...
Check it out here.
May God bless your holiday season!
10-11 Gifts of Purpose from Lifesong for Orphans on Vimeo.
Saturday, November 27, 2010
Friday, November 26, 2010
My friend Carolyn Twietmeyer and her family are featured in the December 6th issue of People Magazine. They have 13 children and are huge advocates for orphans. Their hearts are especially pulled towards HIV+ orphans. I won't give away the article but let me give you one of my favorite quotes. Carolyn says, "We're not wealthy, but we feel rich." AMEN sister!!!! Carolyn is the founder of Project Hopeful, a nonprofit organizations that advocates for HIV+ orphans.
You MUST get a copy of People Magazine and read the article about their family. Then please take time to go to the Project Hopeful website and read more about this wonderful organization.
Holding my People Magazine and wearing my Project Hopeful t-shirt
I love my friend, Maggie. She is in my small group Bible Study. Maggie has the gift of creativity and serving others. She has combined those two gifts into a wonderful business. She has started a business which she calls Sweet M's. Maggie gives 100% of her profits to a family in the process of adopting. She was recently asked to showcase her items at a local store called The Charmed Life. Then, this week she was featured on our local newspaper, The Jessamine Journal. Please stop by her website Sweet M's and check out her store.
Monday, November 22, 2010
Today was the final day for shoebox collection for Samaritan's Purse Operation Christmas Child. If you did not get an opportunity to make a shoebox that's OK because you can still make a financial donation to help with costs associated with sending the boxes. Here is a link to make a donation to Samaritan's Purse.
Friday, November 19, 2010
1. Go to the Ordinary Hero Website
2. Find a shirt on the right sidebar that you want to purchase. There are shirts for ALL ages!! Check out the kids shirts that say "I'm Gonna Change The World" Love them!!!
3. Click on the "Add to Cart" button
4. In the "special instructions" section type in "Maas Family"
5. You have just given our family $10.00 towards our adoption fund
6. Now look around the Ordinary Hero site. This is a wonderful organization doing God's work here in the US and around the world.
REMINDER: This deal is ONLY for the month of NOVEMBER. With EVERY shirt purchased $10.00 goes to our adoption fund. So lets say you are a family of five. You buy a shirt for each person in your family. That is $50.00 for our adoption fund!!!
Tuesday, November 16, 2010
Monday, November 8, 2010
Here is my story . . .
Six years ago God began impressing upon us the frugality of trying to live the “American Dream”. We had built a large home(approx. 3200 sq ft) and filled it with nice furniture. We were a two income family with two children and a dog. We began to think about our future and what that would look like. Honestly, we did not like what we saw. I never wanted to work full time but I would need to work to pay for our comfortable lifestyle. So we began to make drastic changes in our lifestyles. We sold our large home and bought a smaller one that we could afford on one income. Then we began our journey to adoption. The sell of our large home was exactly the amount needed to pay for our first adoption. GOD IS SO GOOD!! Each of our adopted children have amazing stories of God's provisions and miracles. We adopted Faith in December 2007. Jacob and Gabriel came home in July 2008. Grace and Sera came home is January 2010.
I know. I know. I can't "save/rescue" every child and I don't plan to. I don't plan on "saving" anyone. That is the job of my Father in Heaven. My job is to be obedient in loving and serving others.
I don't want crown molding or cathedral ceilings. I don't need ceramic tile or high end appliances. I JUST WANT MORE BEDROOMS!!! A therapy room would be nice since we have therapist in our home 4 days a week. I want to be able to eat dinner at a table where everyone can sit together. I want a big enough yard for 8 or more kids to play in so they can run and play and heal. So I am falling on my face before my Heavenly Father begging and pleading for his favor. Please direct us to a home, a home that would be a place where we can serve you more. A home that would not make us boast but that would give you glory. PRAYING FOR A MIRACLE!!
Thursday, November 4, 2010
Just Love Coffee has a wonderful selection of Fair Trade coffees, as well as coffee related accessories & clothing. Just Love Coffee with donate $5.00 from each purchase to our adoption fund.
Ordinary Hero is having a special promotion during the month of November. Ordinary Hero has a fabulous selection of orphan related shirts & gear for the whole family. They will be adding new merchandise to their website throughout the month of November. For every purchase made that has "Darren & Rebecca Maas" written in the memo line Ordinary Hero will donate $10.00 to our adoption fund. A tax deductible donation may also be made towards our adoption by following the directions on their website. PLUS the top 3 selling families will receive a matching donation for their adoption.
I will also be adding a list of links to the right sidebar of organizations who sell items with a purpose. Please check them out. HAPPY SHOPPING!!!