Realized today I have never posted a picture of Sera using her stick. She does a great job with it. She is still learning to trust the stick and still wants to rely on feeling with her feet. She is really doing amazing and it came very natural for her.
Two weeks ago I took Sera back to Cincinnati Children's Hospital for another round of tests and doctors appointments. We did not find any surprises with her Endocrine system. We are still looking at low levels of growth hormones and issues with urine processing. We will need some more extensive tests to decide what treatment will be necessary. The rest of the Endocrine system systems seems to be working properly for now.
She also had a kidney function test and renal ultrasound done. Her kidneys are still functioning in the "normal" range. That is GREAT!!! The cysts on the right kidney have spread some and now there is some involvement with the left kidney. Still a good report considering.
We go back to see the Endocrinology, Nephrology, Genetics, and Vision in three months to come up with a treatment plan.
On Monday Sera & I will be going to University of Kentucky hospital for a couple of days. Sera need to have tests done for seizure disorder. We know she is having seizure but can't figure out how often without having EEG tests.
Thanks for all your prayers and support!
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