Monday, February 16, 2009
I really don’t even know where to begin. Today we saw the Neurologist and received the results from Jacob’s MRI. Let be begin by saying “not at all what we expected”! Apparently Jacob has several brain abnormalities due to brain malformations during pregnancy. I will do my best to try to explain what he has but to be honest I am clueless. I keep reading it over and over trying to make sense of it. First, Jacob does have some type of brain mass. These types of tumors are somewhat common and do not affect his brain development. He has three other abnormalities of the brain. He has extensive neuronal migrational anomalies, a large “open lip” schizencephalic cleft, and changes of septo-optic dysplasia with absence of the septum pellucidum.
OK, that is a lot to process so in layman terms here is how I understand it. Jacob has a large < shaped cleft(hole) in the left side of his brain. The Septum Pellucidum is a membrane between the left & right side and it is not there. The Neuronal Migrational Anomalies are basically areas all over the brain that just did not completely form.
So, here are some praises. Jacob is not blind, which is a possibility with these abnormalities. Jacob is also not having seizures. The DR said that it is a miracle he is not having seizures and continue to pray that he does not develop them. The prognosis is unclear. Because the brain is one of the coolest things God created it has the ability to compensate for some abnormalities and make connections elsewhere.
I keep playing the MRI over and over in my head. I have never seen anything like it. Parts of his brain were just not there and the parts that were are oddly shaped and not symmetrical.
Again, God continues to show us how awesome He is and what a little miracle we have with Jacob.
GOD IS GOOD ALL THE TIME
Rebecca & Darren