Christmas Miracle 2011

In October 2011 while chatting with a fellow adoptive mom, future adoptions came up in conversation.  They were in the process of adopting two children from China with Down Syndrome.  Knowing they were a large family I asked lots of questions.  I soon discovered that it was possible for large families to adopt children with special needs from China.  She shared with me some children waiting for families at an orphanage in China that their agency was working with.    I was immediately drawn to a couple of the kids.  Just out of curiosity I contacted the agency for more info.  The agency had not received the files from China but they said they would contact me when they did. 

At the same time God had provided an increase in our monthly income.  He provided just enough income for us to meet the USCIS income requirements to immigrate two more children.  I made sure I informed my husband of this new tidbit.  Two months go by and I had not heard back from the adoption agency so I called again.  Of course, at this time, I had not said anything to my husband.  It doesn’t hurt to just get information, right?  They still had not received the files on the children I was interested in but they again said they would let me know.   Out of curiosity I asked if there had been anyone else call and ask about these two kids.  She said, “let me look at my list”.  I was surprised when she came back and said, “you are first on the list to get information on both those children”.   What???  I had not even told my husband I called and we were FIRST on the list.  

I decided it was about time to gently tell my husband what I had been thinking.  His first response was, “we don’t have room”.    Well, I couldn’t really argue with that.  A few days later I came across a blog post by a fellow adoptive mom titled, “Do you have room?”  This blog post is so powerful I am not even going to try to paraphrase.  You have to go read it for yourself.  Of course, I shared it with my husband.  After having a long conversation we decided we could not use “we don’t have room” as an excuse.  I did get a “we will talk about it if the kids files become available”.  That’s progress!!

Here is where God really knocked our socks off.  I had already seen God paving the way but I didn’t expect this.  Several weeks before I had two separate individuals contact me and ask if they could send our kids a few Christmas presents.  Of course, I said yes.  I have made it a policy to never turn away a cheerful giver.  God placed my children on their hearts and I am not about to take away the blessings the giver may receive by following God’s prompting.  One was a former coworker of mine that I have not seen in probably 9 years.  She has stayed connected via facebook and has followed our family’s crazy journey.  The other giver is the company where my sister works.  Every year they sponsor a family for Christmas.  Typically it is a family they do not know but the owner had heard about our family and decided to do things a little different this year. 

The week leading up to Christmas, Darren was given a monetary gift from the individuals in one of the departments in the hospital where he works.  Darren is very humble and rarely talks about our family at work.  When asked he will talk about the kids, but he always makes sure he adds, “ALL glory goes to God”.  Darren works closely with the people in this department and they wanted to bless our family at Christmas.
  

When the Christmas presents came from the generous givers I about passed out.   I don’t think I have ever seen so many presents.  I made sure I told my kids several times that they would not be receiving this many presents every year.
  

Although the old saying is “it is more blessed to be the giver than the receiver” I can say that we really felt blessed.  Darren and I both felt like God was saying, “don’t worry I will take care of all your needs”. 

Then, came the icing on the cake!  Remember when we said “we have no room”.  God made sure to He let us know He had that taken care of too.  On Christmas Day later in the evening the doorbell rang.  When I opened the door there was a beautifully wrapped present on our porch.  When I opened the box inside I found $1,500 in CASH!!!  The card said “please use this gift to help in the purchase of your new home whenever God makes it available to you”.   PS. “We pray that God will find a way for this gift to be multiplied for you and the He will be glorified!!”  Well, guess God has the house thing under control too!

After that we really did not have any excuses left.  Darren and I walked around in a daze the rest of the day.  We talked the next day and decided that if God made these children available to us we would be “ALL IN”

Needless to say God provided.  We committed to adopting two beautiful children with down syndrome.  During the process of completing the mountains of paperwork we were informed that our home was not large enough to meet the agency requirements to adopt more children.  So guess what we did?  We built a larger home!  God provided and as crazy as it sounds because yes it was crazy we built a house and adopted two children at the same time.  

In November 2012 we moved into our new home ONE week before we traveled to China to adopt Lily and Isaac.  

Never underestimate the power of faith to move mountains.  

God's Vision Board

I have been holding off writing this post for several days but today satan has really been attacking me mentally, telling me how inadequate I am, how none of my dreams will actually come to be, that I really didn't hear God, so I am thinking it is time to write.

A few months ago I created a new vision board.  I prayed over it.  These are all things God placed in my heart.  I was given a clear vision for each of them.  I got excited about it.  I hung it where I would see it constantly.

Suddenly I started hearing "that will never happen", "you are not good enough", "you didn't hear God right", "You just need to be happy with your life now".  The negative talk became so ingrained in my head that every time I walked past my vision board I started to cry.  I would grieve.  It became not a vision board but a failure board.  It got to the point where I could no longer look at it and I threw it away.

You guys those are not words from God.  God is never a God of discouragement.  He will never tell you that you are not good enough.  Those words were from satan.  STOP listening to those negative voices.  They are not your future.   Every time you hear a negative thought in your head you need to say "Back off satan!  Not today you don't!"

If God put a passion in your heart and no matter how hard you try you can not get it out of your head THAT IS A GOD THING!  If it's absolutely crazy and seems impossible then get ready to see some crazy miracles.  God created a vision board for you a long time ago.  It is up to you to claim it as yours.

I'm back ........

Hey, I'm back!

I am not going to try to go back and rehash all of life's craziness.  Just trust me when I say life has been crazy.  It has been good.  It has been hard.  It has been painful.  It has been beautiful.  It has been redemptive.

This now hangs on my bedroom wall.  

A reminder of God's faithfulness.

For now I will leave you with some beautiful pictures taken by Make A Wish

Make A Wish Disney Cruise

We were keeping a little secret.  Thank you Make A Wish, Southwest Airlines, Xtreme Transportation, and Disney for making Joshua's wish come true! 

Happy Birthday Elshaday

Today is Elshaday's 14th Birthday.  She has recently become very interested in cooking.  She loves watching kids cooking videos on her Kindle.  Today she got an apron and was able to help make her cake.  She was very excited.  We have a lot of practicing we need to do with cracking eggs though. 

She is a hard worker and never gives up.  Elshaday has such a sweet spirit and always wants to help.  She is a blessing to our family.  

 

Joshua's Story Updated

As I sit here in the hospital and watch one thing after another being pumped through my son's body I am reminded of the miracle that is my son.  Please humor me as I feel like sharing his story again.  I guess in a way sharing gives me some peace.  I pray it touches your heart.

Joshua was found on the side of the road.  He was bleeding from the nose.  His body was covered in sores.  He had very thin fine hair.  They estimated him to be 2-3 years old.  It was hard to tell because he was so tiny and developmentally delayed.  I wonder what his first few years of klife was like?Considering the condition he was in when found I don't think I want to know.    He was taken to the hospital and then transferred to an orphanage.  The timing of the rest of his story is a little fuzzy but here is what I do know.

A group of women had been working in an orphanage for several days.  Every day they would hear screaming and noise but could not locate where it was coming from.  One day they saw some children hanging out of a window and began to ask questions.  They were told “those children are crazy”, “we cannot understand what they are saying”.  The women continued to ask about the children.  God moved mountains and they were lead to the secret door.  The door was locked and held shut by intertwined red and white pieces of scrap material.

Behind that door they found a few very malnourished children, mostly older children.  It was unclear how long they had been locked in that room or if they had ever been out of the room.  One little boy really caught their attention.  His age was unknown.  There was something about this little boy so they begged to take him out of the secret room.  Their request was granted.

He was so fragile that his legs quivered when they tried to stand him up.  His lips were drawn and he had wrinkles like an old man.  However, to everyone’s surprise he had the sweetest smile and the most infectious laugh.  He was so hungry.  When he was fed he would lunge towards the food for more.  It was obvious he had not been getting enough food.

How did he survive?  It was only by the grace of God.  I don't even want to imagine the nights.  I will never know what he enduring physically and emotionally the first 5 years of his life.  I can only imagine.  I touch the scares on his body and weep.  When I raise my voice he falls to the fetal position and covers his head.  Oh sweet baby you are safe now.

You would think how could a child endure more?  Then I went to pick up my sweet boy to complete his adoption.  When I arrived in country to pick up my very malnourished son I was handed a paper with a recent blood test.  I hadn't even met him yet.  I was advised to speak to our doctor back in the USA before we met him in case we didn't want to follow through with the adoption.  The numbers were scary.  I spoke with my husband and we both agreed no way in HELL we were leaving him here to die.

I met Joshua the next day.  He was pale and sick.  He was very tired most of the time.  We immediately took him to the hospital and very scary medical diagnosis were thrown at us.  We were advised that we could not fly with him in his current condition.  We had to take trains throughout the country to complete the adoption.  As we went from city to city we searched for a temporary treatment so we could fly home.  He would bleed a lot.  He became more and more lifeless.  They would not treat him.  He needed a platelet transfusion in order to get on the plane and fly home.  I was so afraid he was going to die right there in my arms but God is so good.  I happened to be a perfect match to give him platelets.  He got platelets and we got on that plane.  I have never prayed so hard.  It was a risk to fly.  I was advised he may not survive the flight.  I was not leaving him behind though.

When we arrived in the USA he was immediately admitted to the hospital where he was diagnosed with Evans Syndrome.  Joshua's immune system kills his red blood cells and platelets.  As if he hadn't fought enough in his young life.  Now he has to fight his own body.  As we are discovering in our current crisis any virus can cause a life threatening situation.  Getting a virus just throws his immune system into crisis.  Seriously??  Hasn't he been through enough.  It's just not fair.  He is so brave.  He is the sweetest boy with a beautiful smile and infectious laugh.  He is one of my heroes.

Are your friends asking where did they go?

I think as large adoptive families there is a stigma to not share the hard stuff.  When we do we get a lot of “you asked for it”, “it's your own fault”, “you should have known what you were getting in to”.  There is no shame in doing the hard stuff.  We should be free to share the hard right along with the good.  We need to walk arm in arm through it all.

I can’t speak for everyone but at least for us choosing to parent children with medical, physical, or emotional special needs required sacrifice.  Please don’t hear me wrong, I am not boasting or claiming recognition for our parenting choice.  The sacrifice has been an honor.  We are the ones that have been humbly blessed.  I guess I just want to share a little of what most don’t see behind the closed doors, puffy eyes, and fake smiles.

We used to be really active in our community and church.  We had lots of friends.  For a while we tried to keep it up but honestly it was just too much work.  Relationships require a great deal of work from all parties involved.  There is a lot to be said about the phrase, “out of sight out of mind”.   I miss having face to face relationships.  I miss having stuff in common to talk about.

When we do leave the house as a family all our focus is on maintaining emotional and physical control of the kiddos.  It is very easy for our kids to get discombobulated.  (Learned that word from my daddy.  It’s become one of my favorite descriptive words.)  Having conversations with others while out is impossible most of the time.  You will see us laugh a lot.  We will probably even make it look easy.  Usually we are holding our breath unsure of what behavior will sneak out it’s ugly head.  We laugh to keep from crying.  Deep down inside we are just praying we don’t disrupt the entire building and we all make it back home alive.

When we get out of the house without kids we try to enjoy our time but always in the back of our minds is what drama has happened while we were gone.  How much time will it take to get everyone regulated again when we get home.      

You will hardly see me in a dress or skirt in public.  I absolutely love fashion and would dress to the hilt every day.  Reality is there are a lot of bodily functions happening around here, vomiting, blood, poop, drool.  Yep really glamorous :)  Four kids have to be lifted, carried or chased.  As you can see fashion has been put on the back burner.  Oh but sometimes I try.

I used to have hobbies, enjoyed just talking to friends, and blogging.  Now days my brain is so full I can’t even think to write.  Conversations with friends are too hard because we just can’t relate to each other.  It just feels fake.

When someone asks “how is everyone?”  And I respond “we are doing great!”  That usually means we are still alive and no one has “quit the family” today.  My new definition for doing great.

It’s not all ugly.  We get to see our kids reach goals everyone said they would not reach.  We have the honor of cheering them on.  We see the Grace of God every day.  We get to hold there hands during tough medical procedures.  We get to laugh with them.  We get to see God healing their little hearts from all the trauma they have experienced.

So if you have friends or family parenting children with special needs please extend them some grace.  They may not return phone calls.  That doesn’t mean they don’t care, probably means life got so crazy they didn’t have the emotional energy or they forgot.  If they stop attending social events it's not because they don’t want to be there, but because what it takes to get there may feel overwhelming.

That’s what is on my heart today.  I am going to try to start blogging again.  This time more of the day to day real stuff.   I am not great with words.  I am not a writer.  Please give me grace in that area.  

Happy 6th Birthday Joshua

Today is the day we celebrate Joshua' s life.  It is not likely that today is his actual date of birth but it is the date given to him. 

"there is an abandoned infant against the BOC in XXXXXX road of XXXXX city.  After receiving call, the policemen on duty, and the student on duty came to the scene, found that the abandoned infant was about 2-3 years old, gender: male.  The child was taken to the hospital for treatment.  According to the growth and development we judged his date of birth as September 6, 2009"


Although he was listed as "abandoned" we know that God never left his side.  Joshua was known and loved from the moment he was conceived.

 

 

 

A time to grow

This little guy has been busy over the last 5 months.

He has learned to .....

 

Walk

 

Drink from a straw

 

Feed himself

 

Talk

 

Beginning to learn sign language

 

Climb stairs

 

Play

He has learned to ....

 

Trust others

 

to be Loved

 

How to love

Family = HOPE

 

I was made available for adoption when I was about 9 months old. 

My future was bright!

 

Two and a half years go by.  I am growing into a strong little boy. 

I am still hopeful that I will find my forever family.



 

 

 

 

Hope was fading.  Why haven't I been chosen? 

The orphanage began completing paperwork to declare me unadoptable

because I had become too weak and frail.

 

 

 

 

FINALLY it was my turn.  I was Chosen!

 

HOPE returns! 

 

(home 3 months)

I begin to grow and thrive.  Joy returns. 

(home 5 months)

 

 

 

Why Adopt? 

 

 

Family Changes Everything!

 

 

When we adopted David he weighted a little over 16 pounds at 4 years old.  He gained 5 pounds in the first 2 weeks.  Five months later and he has doubled his weight.  He has learned to walk, talk, and feed himself.   David has had no medical intervention or therapy.  The only thing we have done is feed him and love him.  Family changes everything!  Family gives HOPE!



This is an outrage!!

My husband and I have adopted several children with disabilities.  We do have private insurance, however, as you may already know or have experienced private insurance does not provide a lot of the services children with significant needs require.   As we discovered each child’s needs we advocated for them and were able to get Kentucky State Medicaid Waivers for each of them.  These waivers provide in home services, community services, and Medicaid insurance.  Our children have had these waivers for several years now. 

Recently, at the advice of several providers, we applied for SSI for the children.   To our surprise our children’s Medicaid was immediately discontinued upon filing the SSI application.   They lost all in home services, Medicaid insurance, therapy, and medical supplies they received through the State Medicaid Waiver. 

After making many phone calls and doing research online I was informed that there is a policy that states a person cannot have an application with DCBS and SSI at the same time.  We were never informed this prior to making the application.

MS 4650 “An application for SSI pending with the SSA is also an application for Aged, Blind, or Disabled MA.  Deny any duplicate application for Aged, Blind, or Disabled MA made with DCBS”

I was also informed that this is an automatic computer generator procedure in which there is no room for interpretation.   During the time that the SSI application is being reviewed Medicaid will be discontinued.   As we all know the application process is not a quick process and could take up to 6 months or longer.  During that time our children will not have any needed services provided by Medicaid or the Medicaid Waiver.

It is my opinion that although this policy makes sense its generalized application does not.   Yes if my children were applying for SSI and Medicaid at the same time it would be a duplicate application.  However, in the case of my children they already had Medicaid.   It was NOT a duplicate application.   A service that they qualify for and have been receiving for several years has been stopped.   They can no longer receive therapy and they no longer have in home services.   We have in home medical supplies which Medicaid has been providing, which includes feeding tube supplies that will no longer be covered. 

We have since discovered other children have also lost their Medicaid due to this policy.   Something needs to change.  Where is the continuance of services?  Medicaid should not be stopped on application but should continue until SSI is approved or denied.   Please help us spread the word!

Fit and Energized Mama

 

 

 

A year ago I began a journey to get healthy.  I had become tired and worn out.  I was not feeling well and having a hard time dragging myself out of the bed.  I feel amazing now!  So much energy.  I would be happy to share more information with you individually if you are interested. 

Just shoot me an email! 

 maasfamily1@gmail.com

 

 

 

China Day 4 GOTCHA DAY

Let me clarify before I continue, this is an expedited adoption.  The in country adoption process was also expedited so what you are about to read is not typical for GOTCHA day. 

Had breakfast at the hotel and prepared to meet Joshua.  We went to the store to pick up a few things.  This was something I had never done, escalator for your grocery cart.

We had to complete some paperwork this morning before we met him.  We arrived at the Official Office to meet Joshua and he had not arrived yet.  We were the only family there at the time.  We scheduled an early appointment so we could get Joshua to the hospital right after we met him. 

As we waited they walked around the corner.  Joshua was a little smaller than I expected.  He was quiet.  We went into the officials office for the "official" meeting.  He came to me easily.  He fussed a little after a few minutes.  He threw a little temper tantrum.  All in all it was a pretty easy transition compared to some I have experienced.

 

 

 

We went straight to the hospital to hopefully get some guidance on his current condition and another blood test.  Unfortunately,  all we got was "he needs to be in the hospital for a long time so we can run tests".  Well, that was not going to work for me! 

 

 

We headed back to the hotel to find food and prepare for the next day.   That evening we headed out to People's Park for a little stroll.  We took lots of selfies. 

 



China Day 3

Looking back on this day is kinda a blur.  It was that morning I realized we were in for an interesting trip.  I consulted with our pediatrician back home and she advised me on the seriousness of Joshua's current condition and that it would not be safe to fly without him using oxygen.   After research we discovered that oxygen was not an option on flights within China.

We met our guide after breakfast to head to Nanning, Guangxi to meet Joshua.  On the way to the airport I shared with her what our pediatrician had advised.  We had to come up with a quick plan as we were to meet Joshua the next morning and then fly with him the day after. 

I know they were a little concerned about us but sometimes you gotta do what ya gotta do.   The ONLY other option than flying was a 18 hour overnight train ride alone without a guide.   Our agency guide said she would take care of everything and explain it to our guide in Nanning.

Miranda and I hopped on the 3 1/2 hour flight to Nanning.

Our wonderful guide met us at the airport, helped us settle into the hotel and get some groceries.  We had a little extra time so we walked around People's Park.  It was nice there about 70 degrees.  A far cry from the freezing weather of Beijing. 

China Day 2

We had a nice breakfast at the hotel and then headed to THE GREAT WALL OF CHINA!!!!  I was so excited to share this with my daughter.  Oh by the way it was FREEZING and very windy.  We enjoyed our time but we were ready to get back inside too. 

That evening we went to an Acrobatics Show.  Sadly you could not take pictures of video.  Miranda really enjoyed the show. 

Day 1 Part 2

I had to add a part 2 to day one.  When we arrived in Beijing our guide picked us up from the airport.  On our way to the hotel we had time to talk about David and Joshua.  This is where our adventure took a drastic turn.  It was then that the magnitude of our "rescue mission" really hit me.


I was told the orphanage had been in the process of taking David off the available list and deeming him "unadoptable" when we requested to adopt him.  Our guide said she had to convince the orphanage that a family really wanted to adopt him.  God's timing is perfect.  If we had waited even a day more to say YES David's life may have been on a different path right now.  UNADOPTABLE.  I am so thankful that God prompted our hearts and we did not hesitate. 


We started talking about Joshua and she handed me a piece of paper giving results from a recent blood test.  She stated that the doctor was concerned by the results and the orphanage wanted me to have the information before we met Joshua.  She asked me to please consult with my doctor back home as soon as possible.  I really didn't think much of it.  I knew Joshua had been severely malnourished so I expected some abnormal test results.  Our guide went on to explain that when Joshua arrived at the orphanage they didn't think he was going to live.  The orphanage decided to not waste any more resources/nanny's time on him and moved him up to the second floor.  That was a gut check right there. 

I think my emotions were all over the place at this point.  .

Grateful 

 

Angry

 

Disbelief

How is it possible that a life no longer has value?  How it is possible that a child is no longer worthy of a family?

China Day 1

Well it was a rollercoaster ride and the internet was unreliable.  We are home.  I am going to post our daily adventures now.

DAY  1

 

 

The ransom has been paid.  We are headed out on a rescue mission.  We are breaking our boys out of the hell they have been living for the last few years. 

We left Lexington around 6:30 a.m.  Flew to Detriot and then to Beijing.  The flight to Beijing was 14 hours long.   I have to say it was the smoothest flight I have ever been on.  Miranda did great!  The view from the sky was beautiful that morning.  We arrive in Beijing in the evening.  Got some dinner and headed to bed. 

China Bound

I can't believe we leave in the morning!!!  Lots going through my mind right now.  Leaving my husband and children is one of the hardest things I have to do.

Here is our schedule!

Jan 24th  TOURING

Jan 26th  GOTCHA for Joshua

Jan 28th  GOTCHA for David

Feb 7th   HOME!!


If internet works well I will try to post daily about our travels!!

Happy Family Day

One of my favorite parts of adoption is our "Family Day".  I know everyone celebrates "Gotcha Day" but I LOVE "Family Day".  So you are probably thinking, what is family day then?

Family Day is the day a new family is born at the airport.  The day when mom, dad, newly adopted children, and siblings are finally all together for the first time.  It's probably one of the most beautiful things you will see this side of Heaven.  So many raw emotions, fears, and excitement all rolled up together. 

Today is our 5 year Family Day with Grace and Sera!

 

We love you Grace and Sera! 

We are so blessed that you are a part of our family.

 

 

 

My Word for 2015 is HOPE

When you tell someone they have value an amazing thing starts happening.  HOPE infiltrates every part of their life. 

God placed the word HOPE in my heart yesterday.  Immediately after a picture popped into my head.  This is my sweet Jacob when we accepted his referral 6 years ago.

This is a picture of Jacob they day we first met, four quick months after we decided to make him our son.

Do you see it?  Someone invested in Jacob.  Someone told him he had value.  He was wanted.  Jacob was given HOPE and he started to thrive. 


Now fast forward to 2014.  We saw a picture of a little boy who broke our hearts in ways we never thought possible.  A little boy who was told he had no worth. 

 

Then someone invested in him.  Someone told him he had value.  He was wanted.  He was given HOPE and he started to thrive.

In just 15 days I will travel to meet our two newest sons.  The first thing I will tell them is "They are wanted and they are loved". 

My word for 2015 is "HOPE".  I don't know what that is going to look like but I do know that God has placed it on my heart this year to #behope and #showhope to others.

Won't you join me?